A pathetic story from a family with 10 children

A pathetic story from a family with 10 children

Obituary Swapna Das from Lakhimpur district was admitted with – recurrent ulcerative ENL reaction (all names changed to protect privacy and confidentiality)

Swapna: May her Soul rest in Peace –She Died , because timely medical intervention was not available to her.

A family of 12 members, 10 children (6 brothers and 4 Sisters) 6 siblings developed leprosy and had treatment with MDT and among them 3 expired due to complications related to Leprosy (Erythema Nodosum Leprosum- ENL severe form) father affected by leprosy, with multiple disabilities, family members feel that he is the main cause for all the miseries attributing to sin’s he had committed.“ is belief on Sin taking over Science”

She had great faith in treatment and had adhered to all the prescriptions – She was treated for Pemphigus a rare dermatological condition, was over treated with Steroids, and developed steroid dependence (this happened at a tertiary level teaching institution. To manage such cases – the only drug of choice is “Thalidomide” an expensive, medicine to be taken under strict precautions and care as in- patients.

Family history

1

Prabhaat Das (M) 35

Developed leprosy treated for Multi-bacillary (B-MDT) 15 years ago

2

Laxmi Das (F) 33

Developed leprosy treated for Multi-bacillary (B-MDT) – Married

3

Vandana Das (F) 31

Developed leprosy treated for Multi-bacillary (B-MDT) – Complication – Expired

4

Mukul Das (M) 30

5

Manoj Kumar Das (M) 29

Developed leprosy treated for Multi-bacillary (B-MDT) complication expired

6

Mongal Das (M) 27

Developed leprosy treated for Multi-bacillary (B-MDT) – Complication Serious condition, not willing to come for in-patient care.

7

Biswajith Kumar Das (M) 25

8

Swapna Das (F) 23

Developed leprosy treated for Multi-bacillary (B-MDT) Complication Expired – admitted and was improving very well, suddenly lost hopes and got discharged against medical advice .. Expired the very next day.24th March 2012

9

Bimal Kumar Das (M) 25

10

Smitha Das (F) 18

Swapna Das was detected on the 20th February 2012, by AIFO – NLEP Consultant, motivated and got her admitted in the Catholic Hospital – Borgang, where she received necessary treatment for her complication with tablet Thalidomide and Blood transfusion, which produced satisfactory improvement, however a month later, she started to refuse treatment and left the hospital against medical advice on 24.March 2012 and expired the very next day at her home.

Lessons learnt:

Capacity Building, expertise development in the field of leprosy, provision of all level Referral system to be in place to identify, refer and manage complications due to leprosy. The present supportive operations need to be intensified.

Dr.Natarajan Manimozhi

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